author = { Kiefer, Petra AND Kirschner, Janbernd AND Pechmann, Astrid AND Langer, Thorsten },

title = { Experiences of caregivers of children with spinal muscular atrophy participating in the expanded access program for nusinersen: a longitudinal qualitative study },

publisher = {BioMed Central},

publisher = {: Albert-Ludwigs-Universität Freiburg},

isbn = {1750-1172},

keywords = { Spinale Muskelatrophie , Kinderkrankenpflege },

year = {2020},

year = {, 2020},

address = { London , ; Freiburg },

url = { http://slubdd.de/katalog?TN_libero_mab2 }