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Damkjær, Mads [Author]; Tan, Joachim [Author]; Morris, Joan K. [Author]; Loane, Maria [Author]; Given, Joanne [Author]; Cavero-Carbonell, Clara [Author]; Gissler, Mika [Author]; Neville, Amanda J. [Author]; Pierini, Anna [Author]; Rißmann, Anke [Author]; Tucker, David [Author]; Garne, Ester [Author]Children with Hirschsprung's disease have high morbidity in the first 5 years of lifeView onlineClose
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Published in: Birth defects research ; 116(2024), 5, Artikel-ID e2338
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Morris, Joan K. [Author]; Loane, Maria [Author]; Wahlich, Charlotte [Author]; Tan, Joachim [Author]; Baldacci, Silvia [Author]; Ballardini, Elisa [Author]; Cavero-Carbonell, Clara [Author]; Damkjær, Mads [Author]; García-Villodre, Laura [Author]; Gissler, Mika [Author]; Given, Joanne [Author]; Gorini, Francesca [Author]; Heino, Anna [Author]; Limb, Elizabeth [Author]; Lutke, Renee [Author]; Neville, Amanda [Author]; Rißmann, Anke [Author]; Scanlon, Leuan [Author]; Tucker, David F. [Author]; Urhoj, Stine Kjaer [Author]; Walle, Hermien E. K. de [Author]; Garne, Ester [Author]Hospital care in the first 10 years of life of children with congenital anomalies in six European countries : data from the EUROlinkCAT cohort linkage studyView onlineClose
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Published in: Archives of disease in childhood ; 109(2024), 5, Seite 402-408
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Claridge, Hugh [Author]; Tan, Joachim [Author]; Loane, Maria [Author]; Garne, Ester [Author]; Barišic, Ingeborg [Author]; Cavero-Carbonell, Clara [Author]; Dias, Carlos [Author]; Gatt, Miriam [Author]; Jordan, Susan [Author]; Khoshnood, Babak [Author]; Kiuru-Kuhlefelt, Sonja [Author]; Klungsoyr, Kari [Author]; Carollo, Olatz Mokoroa [Author]; Nelen, Vera [Author]; Neville, Amanda J. [Author]; Pierini, Anna [Author]; Randrianaivo, Hanitra [Author]; Rißmann, Anke [Author]; Tucker, David [Author]; Walle, Hermien de [Author]; Wertelecki, Wladimir [Author]; Morris, Joan K. [Author]Ethics and legal requirements for data linkage in 14 European countries for children with congenital anomaliesView onlineClose
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Published in: BMJ open ; 13(2023), 7, Artikel-ID e071687
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Garne, Ester [Author]; Loane, Maria [Author]; Tan, Joachim [Author]; Ballardini, Elisa [Author]; Brigden, Joanna [Author]; Cavero-Carbonell, Clara [Author]; Coi, Alessio [Author]; Damkjær, Mads [Author]; García-Villodre, Laura [Author]; Gissler, Mika [Author]; Given, Joanne [Author]; Heino, Anna [Author]; Jordan, Sue [Author]; Limb, Elizabeth [Author]; Neville, Amanda [Author]; Rißmann, Anke [Author]; Santoro, Michele [Author]; Scanlon, Ieuan [Author]; Urhoj, Stine Kjaer [Author]; Wellesley, Diana [Author]; Morris, Joan [Author]European study showed that children with congenital anomalies often underwent multiple surgical procedures at different ages across EuropeView onlineClose
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Published in: Acta paediatrica ; 112(2023), 6, Seite 1304-1311
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Garne, Ester [Author]; Tan, Joachim [Author]; Damkjaer, Mads [Author]; Ballardini, Elisa [Author]; Cavero-Carbonell, Clara [Author]; Coi, Alessio [Author]; Garcia-Villodre, Laura [Author]; Gissler, Mika [Author]; Given, Joanne [Author]; Heino, Anna [Author]; Jordan, Sue [Author]; Limb, Elizabeth [Author]; Loane, Maria [Author]; Neville, Amanda J. [Author]; Pierini, Anna [Author]; Rißmann, Anke [Author]; Tucker, David [Author]; Urhoj, Stine Kjaer [Author]; Morris, Joan [Author]Hospital length of stay and surgery among European children with rare structural congenital anomalies : a population-based data linkage studyView onlineClose
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Published in: International journal of environmental research and public health ; 20(2023), 5, Artikel-ID 4387
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Damkjær, Mads [Author]; Garne, Ester [Author]; Loane, Maria [Author]; Urhoj, Stine K. [Author]; Ballardini, Elisa [Author]; Cavero-Carbonell, Clara [Author]; Coi, Alessio [Author]; Garcia-Villodre, Laura [Author]; Given, Joanne [Author]; Gissler, Mika [Author]; Heino, Anna [Author]; Jordan, Sue [Author]; Limb, Elizabeth [Author]; Neville, Amanda J. [Author]; Pierini, Anna [Author]; Rißmann, Anke [Author]; Tan, Joachim [Author]; Scanlon, Ieuan [Author]; Morris, Joan K. [Author]Timing of cardiac surgical interventions and postoperative mortality in children with severe congenital heart defects across Europe : data from the EUROlinkCAT studyView onlineClose
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Published in: American Heart Association: Journal of the American Heart Association ; 12(2023), 24, Artikel-ID e029871
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Latos-Bieleńska, Anna [Author]; Marcus, Elena [Author]; Jamry-Dziurla, Anna [Author]; Rankin, Judith [Author]; Barišic, Ingeborg [Author]; Cavero- Carbonell, Clara [Author]; Den Hond, Elly [Author]; Garne, Ester [Author]; Genard, Lucas [Author]; Santos, Ana João [Author]; Lutke, L. Renée [Author]; Dias, Carlos Matias [Author]; Pedersen, Christina Neergaard [Author]; Neville, Amanda [Author]; Niemann, Annika [Author]; Odak, Ljubica [Author]; Páramo-Rodríguez, Lucía [Author]; Pierini, Anna [Author]; Rißmann, Anke [Author]; Morris, Joan K. [Author]COVID-19 and children with congenital anomalies : a European survey of parents’ experiences of healthcare servicesView onlineClose
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Published in: BMJ open ; 12(2022), 7, Artikel-ID e061428
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Garne, Ester [Author]; Tan, Joachim [Author]; Loane, Maria [Author]; Baldacci, Silvia [Author]; Ballardini, Elisa [Author]; Brigden, Joanne [Author]; Cavero-Carbonell, Clara [Author]; García-Villodre, Laura [Author]; Gissler, Mika [Author]; Given, Joanne [Author]; Heino, Anna [Author]; Jordan, Sue [Author]; Limb, Elizabeth [Author]; Neville, Amanda Julie [Author]; Rißmann, Anke [Author]; Santoro, Michele [Author]; Scanlon, Ieuan [Author]; Urhoj, Stine Kjaer [Author]; Wellesley, Diana G. [Author]; Morris, Joan [Author]Gastrostomy and congenital anomalies : a European population-based studyView onlineClose
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Published in: BMJ paediatrics open ; 6(2022), Artikel-ID e001526
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Marcus, Elena [Author]; Latos-Bielenska, Anna [Author]; Jamry-Dziurla, Anna [Author]; Barišic, Ingeborg [Author]; Cavero-Carbonell, Clara [Author]; Hond, Elly Den [Author]; Garne, Ester [Author]; Genard, Lucas [Author]; Santos, Ana João [Author]; Lutke, L. Renée [Author]; Dias, Carlos Matias [Author]; Pedersen, Christina Neergaard [Author]; Neville, Amanda J. [Author]; Niemann, Annika [Author]; Odak, Ljubica [Author]; Pierini, Anna [Author]; Rico, Juan [Author]; Rißmann, Anke [Author]; Rankin, Judith [Author]; Morris, Joan K. [Author]Information needs of parents of children with congenital anomalies across Europe : a EUROlinkCAT surveyView onlineClose
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Published in: BMC pediatrics ; 22(2022), Artikel-ID 657
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Morris, Joan K. [Author]; Bergman, Jorieke E. H. [Author]; Barišic, Ingeborg [Author]; Wellesley, Diana [Author]; Tucker, David [Author]; Limb, Elizabeth [Author]; Addor, Marie-Claude [Author]; Cavero-Carbonell, Clara [Author]; Dias, Carlos Matias [Author]; Draper, Elisabeth S. [Author]; Echevarría-González-de-Garibay, Luis Javier [Author]; Gatt, Miriam [Author]; Klungsøyr, Kari [Author]; Lelong, Nathalie [Author]; Luyt, Karen [Author]; Materna-Kiryluk, Anna [Author]; Nelen, Vera [Author]; Neville, Amanda [Author]; Perthus, Isabelle [Author]; Pierini, Anna [Author]; Rankin, Judith [Author]; Rißmann, Anke [Author]; Rouget, Florence [Author]; Sayers, Geraldine [Author]; [...] ; Randrianaivo-Ranjatoelina, Hanitra [Other]Surveillance of multiple congenital anomalies : searching for new associationsView onlineClose
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Published in: European journal of human genetics ; 32(2024), 4, Seite 407-412
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Rißmann, Anke [Author]; Tan, Joachim [Author]; Glinianaia, Svetlana V. [Author]; Rankin, Judith [Author]; Pierini, Anna [Author]; Santoro, Michele [Author]; Coi, Alessio [Author]; Garne, Ester [Author]; Loane, Maria [Author]; Given, Joanne [Author]; Reid, Abigail [Author]; Aizpurua, Amaia [Author]; Akhmedzhanova, Diana [Author]; Ballardini, Elisa [Author]; Barišic, Ingeborg [Author]; Cavero-Carbonell, Clara [Author]; Walle, Hermien E. K. de [Author]; Gatt, Miriam [Author]; Gissler, Mika [Author]; Heino, Anna [Author]; Jordan, Sue [Author]; Urhoj, Stine Kjaer [Author]; Klungsøyr, Kari [Author]; Lutke, Renee [Author]; [...]Causes of death in children with congenital anomalies up to age 10 in eight European countriesView onlineClose
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Published in: BMJ paediatrics open ; 7(2023), 1, Artikel-ID e001617
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Mamasoula, Chrysovalanto [Author]; Bigirumurame, Theophile [Author]; Chadwick, Thomas [Author]; Addor, Marie-Claude [Author]; Cavero-Carbonell, Clara [Author]; Dias, Carlos M. [Author]; Echevarría-González-de-Garibay, Luis-Javier [Author]; Gatt, Miriam [Author]; Khoshnood, Babak [Author]; Klungsoyr, Kari [Author]; Randall, Kay [Author]; Stoianova, Sylvia [Author]; Häusler, Martin [Author]; Nelen, Vera [Author]; Neville, Amanda J. [Author]; Perthus, Isabelle [Author]; Pierini, Anna [Author]; Bertaut-Nativel, Bénédicte [Author]; Rißmann, Anke [Author]; Rouget, Florence [Author]; Schaub, Bruno [Author]; Tucker, David [Author]; Wellesley, Diana [Author]; Zymak-Zakutnia, Natalya [Author]; [...]Maternal age and the prevalence of congenital heart defects in Europe, 1995-2015 : a register-based studyView onlineClose
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Published in: Birth defects research ; 115(2023), 6, Seite 583-594
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Mamasoula, Chrysovalanto [Author]; Addor, Marie-Claude [Author]; Cavero Carbonell, Clara [Author]; Dias, Carlos M. [Author]; Echevarría-González-de-Garibay, Luis-Javier [Author]; Gatt, Miriam [Author]; Khoshnood, Babak [Author]; Klungsoyr, Kari [Author]; Randall, Kay [Author]; Stoianova, Sylvia [Author]; Häusler, Martin [Author]; Nelen, Vera [Author]; Neville, Amanda J. [Author]; Perthus, Isabelle [Author]; Pierini, Anna [Author]; Bertaut-Nativel, Bénédicte [Author]; Rißmann, Anke [Author]; Rouget, Florence [Author]; Schaub, Bruno [Author]; Tucker, David [Author]; Wellesley, Diana [Author]; Zymak-Zakutnia, Natalya [Author]; Barišic, Ingeborg [Author]; Walle, Hermien E. K. de [Author]; [...]Prevalence of congenital heart defects in Europe, 2008-2015 : a registry-based studyView onlineClose
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Published in: Birth defects research ; 114(2022), 20, Seite 1404-1416
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Morris, Joan K. [Author]; Wellesley, Diana [Author]; Limb, Elizabeth [Author]; Bergman, Jorieke E. H. [Author]; Kinsner-Ovaskainen, Agnieszka [Author]; Addor, Marie Claude [Author]; Broughan, Jennifer M. [Author]; Cavero-Carbonell, Clara [Author]; Dias, Carlos M. [Author]; Echevarría-González-de-Garibay, Luis-Javier [Author]; Gatt, Miriam [Author]; Häusler, Martin [Author]; Barišic, Ingeborg [Author]; Klungsoyr, Kari [Author]; Lelong, Nathalie [Author]; Materna-Kiryluk, Anna [Author]; Neville, Amanda [Author]; Nelen, Vera [Author]; O'Mahony, Mary T. [Author]; Perthus, Isabelle [Author]; Pierini, Anna [Author]; Rankin, Judith [Author]; Rißmann, Anke [Author]; Rouget, Florence [Author]; [...]Prevalence of vascular disruption anomalies and association with young maternal age : a EUROCAT study to compare the United Kingdom with other European countriesView onlineClose
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Published in: Birth defects research ; 114(2022), 20, Seite 1417-1426
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Santoro, Michele [Author]; Coi, Alessio [Author]; Pierini, Anna [Author]; Rankin, Judith [Author]; Glinianaia, Svetlana V. [Author]; Tan, Joachim [Author]; Reid, Abigail [Author]; Garne, Ester [Author]; Loane, Maria [Author]; Given, Joanne [Author]; Aizpurua, Amaia [Author]; Astolfi, Gianni [Author]; Barišic, Ingeborg [Author]; Cavero-Carbonell, Clara [Author]; Walle, Hermien E. K. de [Author]; Hond, Elly Den [Author]; García-Villodre, Laura [Author]; Gatt, Miriam [Author]; Gissler, Mika [Author]; Jordan, Sue [Author]; Khoshnood, Babak [Author]; Kiuru-Kuhlefelt, Sonja [Author]; Klungsøyr, Kari [Author]; Lelong, Nathalie [Author]; [...]Temporal and geographical variations in survival of children born with congenital anomalies in Europe : a multi-registry cohort studyView onlineClose
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Published in: Paediatric and perinatal epidemiology ; 36(2022), 6, Seite 792-803
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Morris, Joan K. [Author]; Addor, Marie-Claude [Author]; Ballardini, Elisa [Author]; Barišic, Ingeborg [Author]; Barrachina-Bonet, Laia [Author]; Braz, Paula [Author]; Cavero-Carbonell, Clara [Author]; Den Hond, Elly [Author]; Garne, Ester [Author]; Gatt, Miriam [Author]; Häusler, Martin [Author]; Khoshnood, Babak [Author]; Lelong, Nathalie [Author]; Kinsner-Ovaskainen, Agnieszka [Author]; Kiuru-Kuhlefelt, Sonja [Author]; Klungsoyr, Kari [Author]; Latos-Bielenska, Anna [Author]; Limb, Elizabeth [Author]; O'Mahony, Mary T. [Author]; Perthus, Isabelle [Author]; Pierini, Anna [Author]; Rankin, Judith [Author]; Rißmann, Anke [Author]; Rouget, Florence [Author]; [...]Prevention of neural tube defects in Europe : a public health failureView onlineClose
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Published in: Frontiers in Pediatrics ; 9(2021), Artikel-ID 647038
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Bergman, Jorieke E. H. [Author]; Barišic, Ingeborg [Author]; Addor, Marie-Claude [Author]; Braz, Paula [Author]; Cavero-Carbonell, Clara [Author]; Draper, Elizabeth S. [Author]; Echevarría-González-de-Garibay, Luis J. [Author]; Gatt, Miriam [Author]; Häusler, Martin [Author]; Khoshnood, Babak [Author]; Klungsøyr, Kari [Author]; Kurinczuk, Jennifer J. [Author]; Latos-Bielenska, Anna [Author]; Luyt, Karen [Author]; Martin, Danielle [Author]; Mullaney, Carmel [Author]; Nelen, Vera [Author]; Neville, Amanda J. [Author]; O'Mahony, Mary T. [Author]; Perthus, Isabelle [Author]; Pierini, Anna [Author]; Randrianaivo, Hanitra [Author]; Rankin, Judith [Author]; Rißmann, Anke [Author]; [...]Amniotic band syndrome and limb body wall complex in Europe 1980-2019View onlineClose
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Published in: American journal of medical genetics ; 191(2023), 4, Seite 995-1006
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Thurin, Nicolas H. [Author]; Pajouheshnia, Romin [Author]; Roberto, Giuseppe [Author]; Dodd, Caitlin [Author]; Hyeraci, Giulia [Author]; Bartolini, Claudia [Author]; Paoletti, Olga [Author]; Nordeng, Hedvig [Author]; Wallach-Kildemoes, Helle [Author]; Ehrenstein, Vera [Author]; Dudukina, Elena [Author]; MacDonald, Thomas M. [Author]; De Paoli, Giorgia [Author]; Loane, Maria [Author]; Damase-Michel, Christine [Author]; Beau, Anna-Belle [Author]; Droz-Perroteau, Cécile [Author]; Lassalle, Régis [Author]; Bergman, Jorieke [Author]; Swart, Karin [Author]; Schink, Tania [Author]; Cavero-Carbonell, Clara [Author]; Barrachina-Bonet, Laia [Author]; Gomez-Lumbreras, Ainhoa [Author]; [...]From inception to ConcePTION : genesis of a network to support better monitoring and communication of medication safety during pregnancy and breastfeedingView onlineClose
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Published in: Clinical pharmacology & therapeutics ; 111(2022), 1, Seite 321-331
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Loane, Maria [Author]; Given, Joanne E. [Author]; Tan, Joachim [Author]; Reid, Abigail [Author]; Akhmedzhanova, Diana [Author]; Astolfi, Gianni [Author]; Barišic, Ingeborg [Author]; Bertille, Nathalie [Author]; Bonet, Laia Barrachina [Author]; Carbonell, Clara Cavero [Author]; Mokoroa Carollo, Olatz [Author]; Coi, Alessio [Author]; Densem, James [Author]; Draper, Elizabeth [Author]; Garne, Ester [Author]; Gatt, Miriam [Author]; Glinianaia, Svetlana V. [Author]; Heino, Anna [Author]; Hond, Elly Den [Author]; Jordan, Sue [Author]; Khoshnood, Babak [Author]; Kiuru-Kuhlefelt, Sonja [Author]; Klungsøyr, Kari [Author]; Lelong, Nathalie [Author]; [...]Linking a European cohort of children born with congenital anomalies to vital statistics and mortality records : a EUROlinkCAT studyView onlineClose
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Published in: PLOS ONE ; 16(2021), 8, Artikel-ID e0256535
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Putte, Romy van de [Author]; Rooij, Iris Antonia Leonarda Martina van [Author]; Haanappel, Cynthia P. [Author]; Marcelis, Carlo L. M. [Author]; Brunner, Han G. [Author]; Addor, Marie-Claude [Author]; Cavero-Carbonell, Clara [Author]; Dias, Carlos M. [Author]; Draper, Elizabeth S. [Author]; Etxebarriarteun, Larraitz [Author]; Gatt, Miriam [Author]; Khoshnood, Babak [Author]; Kinsner-Ovaskainen, Agnieszka [Author]; Klungsoyr, Kari [Author]; Kurinczuk, Jenny J. [Author]; Latos-Bielenska, Anna [Author]; Luyt, Karen [Author]; O’Mahony, Mary T. [Author]; Miller, Nicola [Author]; Mullaney, Carmel [Author]; Nelen, Vera [Author]; Neville, Amanda J. [Author]; Perthus, Isabelle [Author]; Pierini, Anna [Author]; [...]Maternal risk factors for the VACTERL association : a EUROCAT case–control studyView onlineClose
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Published in: Birth defects research ; 112(2020), 9, Seite 688-698