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  1. Litzkendorf, Svenja [Author] ; Schulenburg, Johann-Matthias von der [Degree supervisor]; Zeidler, Jan [Degree supervisor] Gottfried Wilhelm Leibniz Universität Hannover

    Leistungsgerechte Vergütungsansätze und zielgruppenorientiertes Informationsmanagement im Bereich seltener Erkrankungen

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    Hannover: Gottfried Wilhelm Leibniz Universität Hannover, 2024

  3. Litzkendorf, Svenja [Author]; Eidt-Koch, Daniela [Author]; Zeidler, Jan [Author]; Schulenburg, Johann-Matthias Graf von der [Author]

    Sustainable reimbursement of the B‑centres for rare diseases in Germany—status quo and solution approaches

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    Hannover: Gottfried Wilhelm Leibniz Universität Hannover, 2022 ; Hannover: Technische Informationsbibliothek (TIB), 2022

    Published in: Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz ; 65 (2022), S. 872-880

  4. Litzkendorf, Svenja [Author]; Eidt-Koch, Daniela [Author]; Zeidler, Jan [Author]; Schulenburg, Johann-Matthias Graf von der [Author]

    Sustainable reimbursement of the B‑centres for rare diseases in Germany—status quo and solution approaches ; Nachhaltige Vergütung der B-Zentren für Seltene Erkrankungen in Deutschland – Status quo und Lösungsansätze - [published Version]

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    Berlin; Heidelberg : Springer, 2022

    Published in: Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz 65 (2022) ; Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz

  5. Pauer, Fréderic [Author]; Litzkendorf, Svenja [Author]; Göbel, Jens [Author]; Storf, Holger [Author]; Zeidler, Jan [Author]; Schulenburg, Johann-Matthias Graf von der [Author]

    Rare diseases on the internet: An assessment of the quality of online information

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    Hannover: Gottfried Wilhelm Leibniz Universität Hannover, 2017 ; Hannover: Technische Informationsbibliothek (TIB), 2017

    Published in: Journal of Medical Internet Research ; 19 (2017), Nr. 1, No. e23

  6. Pauer, Fréderic [Author]; Litzkendorf, Svenja [Author]; Göbel, Jens [Author]; Storf, Holger [Author]; Zeidler, Jan [Author]; Schulenburg, Johann-Matthias Graf von der [Author]

    Rare diseases on the internet: An assessment of the quality of online information - [published Version]

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    Journal of Medical Internet Research, 2017

    Published in: Journal of Medical Internet Research 19 (2017), Nr. 1

  7. Peña-Longobardo, Luz María [Author]; Aranda-Reneo, Isaac [Author]; Oliva-Moreno, Juan [Author]; Litzkendorf, Svenja [Author]; Durand-Zaleski, Isabelle [Author]; Tizzano, Eduardo [Author]; López-Bastida, Julio [Author]

    The economic impact and health-related quality of life of spinal muscular atrophy. An analysis across europe

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    Hannover: Gottfried Wilhelm Leibniz Universität Hannover, 2020 ; Hannover: Technische Informationsbibliothek (TIB), 2020

    Published in: International Journal of Environmental Research and Public Health ; 17 (2020), Nr. 16, 5640

  8. Peña-Longobardo, Luz María [Author]; Aranda-Reneo, Isaac [Author]; Oliva-Moreno, Juan [Author]; Litzkendorf, Svenja [Author]; Durand-Zaleski, Isabelle [Author]; Tizzano, Eduardo [Author]; López-Bastida, Julio [Author]

    The economic impact and health-related quality of life of spinal muscular atrophy. An analysis across europe - [published Version]

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    Basel : MDPI, 2020

    Published in: International Journal of Environmental Research and Public Health 17 (2020), Nr. 16 ; International Journal of Environmental Research and Public Health

  9. Litzkendorf, Svenja [Author]; Frank, Martin [Author]; Babac, Ana [Author]; Rosenfeldt, Daniel [Author]; Schauer, Franziska [Author]; Hartz, Tobias [Author]; Schulenburg, Johann-Matthias von der [Author]

    Use and importance of different information sources among patients with rare diseases and their relatives over time: a qualitative study

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    London: Springer Nature, 2020

    Published in: BMC Public Health ; 20, 1 (2020), 860

  10. Litzkendorf, Svenja [Author]; Frank, Martin [Author]; Babac, Ana [Author]; Rosenfeldt, Daniel [Author]; Schauer, Franziska [Author]; Hartz, Tobias [Author]; Schulenburg, Johann-Matthias Graf von der [Author]

    Use and importance of different information sources among patients with rare diseases and their relatives over time: a qualitative study

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    Hannover: Gottfried Wilhelm Leibniz Universität Hannover, 2020 ; Hannover: Technische Informationsbibliothek (TIB), 2020

    Published in: BMC Public Health ; 20 (2020), 860

  11. Litzkendorf, Svenja [Author]; Frank, Martin [Author]; Babac, Ana [Author]; Rosenfeldt, Daniel [Author]; Schauer, Franziska [Author]; Hartz, Tobias [Author]; Schulenburg, Johann-Matthias Graf von der [Author]

    Use and importance of different information sources among patients with rare diseases and their relatives over time: a qualitative study - [published Version]

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    London : BioMed Central, 2020

    Published in: BMC Public Health 20 (2020)

  12. Babac, Ana [Author]; von Friedrichs, Verena [Author]; Litzkendorf, Svenja [Author]; Zeidler, Jan [Author]; Damm, Kathrin [Author]; Schulenburg, Johann-Matthias Graf von der [Author]

    Integrating patient perspectives in medical decision-making: a qualitative interview study examining potentials within the rare disease information exchange process in practice - [published Version]

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    London : BioMed Central, 2019

    Published in: BMC Medical Informatics and Decision Making 19 (2019)

  13. Babac, Ana [Author]; Litzkendorf, Svenja [Author]; Schmidt, Katharina [Author]; Damm, Kathrin [Author]; Frank, Martin [Author]; Schulenburg, Johann-Matthias Graf von der [Author]; Pauer, Frederic [Author]

    Shaping an Effective Health Information Website on Rare Diseases Using a Group Decision-Making Tool: Inclusion of the Perspectives of Patients, Their Family Members, and Physicians - [published Version]

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    College Park : American Physical Society, 2017

    Published in: Interactive Journal of Medical Research 6 (2017), Nr. 2

  14. Schulenburg, Johann-Matthias von der [Author]; Zeidler, Jan [Author]; Damm, Kathrin [Author]; Klora, Mike [Author]; Kuhldamm, Alexander [Author]; Neubauer, Sarah [Author]; Plöthner, Marika Anne [Author]; Schmidt, Katharina [Author]; Scholz, Stefan [Author]; Treskova, Marina [Author]; Jong, Lea de [Author]; Kreis, Kristine [Author]; Litzkendorf, Svenja [Author]; Schmidt, Torben [Author] ; Gottfried Wilhelm Leibniz Universität Hannover, Center for Health Economics Research Hannover

    Center for Health Economics Research Hannover (CHERH) : Titelblatt zum Schlussbericht : Laufzeit: 01.08.2016-31.12.2020

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    Hannover: Leibniz Universität Hannover, 30.06.2021

  15. Litzkendorf, Svenja [Author]; Hartz, Tobias [Author]; Göbel, Jens [Author]; Storf, Holger [Author]; Pauer, Frédéric [Author]; Babac, Ana [Author]; Lührs, Verena [Author]; Bruckner-Tuderman, Leena [Author]; Schauer, Franziska [Author]; Schmidtke, Jörg [Author]; Biehl, Lisa [Author]; Wagner, Thomas O.F [Author]; Schulenburg, Johann-Matthias Graf von der [Author]; Frank, Martin [Author]

    Conceptualization and implementation of the central information portal on rare diseases: Protocol for a qualitative study

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    Hannover: Gottfried Wilhelm Leibniz Universität Hannover, 2018 ; Hannover: Technische Informationsbibliothek (TIB), 2018

    Published in: Journal of Medical Internet Research ; 20 (2018), Nr. 5, e112

  16. Litzkendorf, Svenja [Author]; Hartz, Tobias [Author]; Göbel, Jens [Author]; Storf, Holger [Author]; Pauer, Frédéric [Author]; Babac, Ana [Author]; Lührs, Verena [Author]; Bruckner-Tuderman, Leena [Author]; Schauer, Franziska [Author]; Schmidtke, Jörg [Author]; Biehl, Lisa [Author]; Wagner, Thomas Otto Friedrich [Author]; Schulenburg, Johann-Matthias von der [Author]; Frank, Martin [Author]

    Conceptualization and implementation of the central information portal on rare diseases: protocol for a qualitative study

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    Toronto: JMIR Publications Inc., 2018

    Published in: JMIR Research Protocols ; 7, 5 (2018), e112

  17. Litzkendorf, Svenja [Author]; Hartz, Tobias [Author]; Göbel, Jens [Author]; Storf, Holger [Author]; Pauer, Frédéric [Author]; Babac, Ana [Author]; Lührs, Verena [Author]; Bruckner-Tuderman, Leena [Author]; Schauer, Franziska [Author]; Schmidtke, Jörg [Author]; Biehl, Lisa [Author]; Wagner, Thomas O.F. [Author]; Schulenburg, Johann-Matthias Graf von der [Author]; Frank, Martin [Author]

    Conceptualization and implementation of the central information portal on rare diseases: Protocol for a qualitative study - [published Version]

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    Toronto : JMIR Publications, 2018

    Published in: Journal of Medical Internet Research 20 (2018), Nr. 5

  18. Babac, Ana [Author]; Frank, Martin [Author]; Pauer, Frédéric [Author]; Litzkendorf, Svenja [Author]; Rosenfeldt, Daniel [Author]; Lührs, Verena [Author]; Biehl, Lisa [Author]; Hartz, Tobias [Author]; Storf, Holger [Author]; Schauer, Franziska [Author]; Wagner, Thomas Otto Friedrich [Author]; Schulenburg, Johann-Matthias von der [Author]

    Telephone health services in the field of rare diseases: a qualitative interview study examining the needs of patients, relatives, and health care professionals in Germany

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    London: Springer Nature, 2018

    Published in: BMC health services research ; 18, 1 (2018), 99

  19. Babac, Ana [Author]; Frank, Martin [Author]; Pauer, Frederic [Author]; Litzkendorf, Svenja [Author]; Rosenfeldt, Daniel [Author]; Lührs, Verena [Author]; Biehl, Lisa [Author]; Hartz, Tobias [Author]; Storf, Holger [Author]; Schauer, Franziska [Author]; Wagner, Thomas O.F. [Author]; Schulenburg, Johann-Matthias Graf von der [Author]

    Telephone health services in the field of rare diseases: A qualitative interview study examining the needs of patients, relatives, and health care professionals in Germany - [published Version]

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    London : BioMed Central Ltd., 2018

    Published in: BMC Health Services Research 18 (2018), Nr. 1

  20. Pauer, Frederic [Author]; Gobel, Jens [Author]; Storf, Holger [Author]; Litzkendorf, Svenja [Author]; Babac, Ana [Author]; Frank, Martin [Author]; Luhrs, Verena [Author]; Schauer, Franziska [Author]; Schmidtke, Jorg [Author]; Biehl, Lisa [Author]; Wagner, Thomas O.F [Author]; Uckert, Frank [Author]; Schulenburg, Johann-Matthias Graf von der [Author]; Hartz, Tobias [Author]

    Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases

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    Hannover: Gottfried Wilhelm Leibniz Universität Hannover, 2016 ; Hannover: Technische Informationsbibliothek (TIB), 2016

    Published in: Interactive Journal of Medical Research ; 5 (2016), Nr. 3, e24