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Helin, Minttu; Karukivi, Max; Rautava, Päivi; Hirvonen, Milka; Huhtala, Mira; Setänen, Sirkku; Ekblad, Mikael; Ekblad, Satu; Ekholm, Eeva; Grönroos, Linda; Haataja, Leena; Haveri, Laura; Joensuu, Eveliina; Kero, Pentti; Korja, Riikka; Lahti, Katri; Lapinleimu, Helena; Lehtonen, Liisa; Lehtonen, Tuomo; Leppänen, Marika; Lind, Annika; Maunu, Jonna; Munck, Petriina; Mäkilä, Eeva; [...]

Pre-notifications increase retention in a 17-year follow-up of adolescents born very preterm

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  • Media type: E-Article
  • Title: Pre-notifications increase retention in a 17-year follow-up of adolescents born very preterm
  • Contributor: Helin, Minttu; Karukivi, Max; Rautava, Päivi; Hirvonen, Milka; Huhtala, Mira; Setänen, Sirkku; Ekblad, Mikael; Ekblad, Satu; Ekholm, Eeva; Grönroos, Linda; Haataja, Leena; Haveri, Laura; Joensuu, Eveliina; Kero, Pentti; Korja, Riikka; Lahti, Katri; Lapinleimu, Helena; Lehtonen, Liisa; Lehtonen, Tuomo; Leppänen, Marika; Lind, Annika; Maunu, Jonna; Munck, Petriina; Mäkilä, Eeva; [...]
  • Published: Springer Science and Business Media LLC, 2023
  • Published in: Trials, 24 (2023) 1
  • Language: English
  • DOI: 10.1186/s13063-023-07390-1
  • ISSN: 1745-6215
  • Origination:
  • Footnote:
  • Description: Abstract Objective Retention is essential in follow-up studies to reduce missing data, which can cause bias and limit the generalizability of the results. We investigated whether pre-notification letters would increase the response rates of approval forms and questionnaires and reduce the need for post-notifications in a prospective follow-up study of 17-year-old adolescents. Study design and settings This long-term follow-up study included 269 adolescents were randomized (1:1) into a pre-notification group (n = 132) and a no pre-notification group (n = 137). The pre-notification letter was sent prior to the approval form and questionnaires. The outcome measures were the response rates to the approval forms and questionnaires and the rate of post-notifications required. Results The adolescents who received the pre-notifications were more likely to return approval forms (n = 88/132, 67%) than the adolescents who did not receive the pre-notifications (n = 79/137, 58%) (OR 1.5, 95% CI 0.9–2.4). The rates of returned questionnaires were higher in the pre-notification group (n = 82/88, 93%) than in the no pre-notification group (n = 68/79, 86%) (OR 2.2, 95% CI 0.8–6.3). The adolescents who did not receive the pre-notifications were more likely to need the post-notifications than the adolescents who received the pre-notifications (OR 3.0, 95% CI 1.4 to 6.5). Conclusions Pre-notifications decreased the need for post-notifications and may increase retention in 17-year-old adolescents. Based on our findings, pre-notification letters are recommended in future follow-up studies in adolescents. Trial registration The Ethics Review Committee of the Hospital District of South-West Finland approved the 17-year PIPARI Study protocol in January 2018 (23.1.2018; 2/180/2012). The study has been registered to the SWAT repository as SWAT 179. Filetoupload,1457904,en.pdf (qub.ac.uk).
  • Access State: Open Access