Media type: E-Book; Special Print Title: Mapping health care of rare diseases: the example of epidermolysis bullosa in Germany Contributor: Reimer-Taschenbrecker, Antonia [Author]; Bruckner-Tuderman, Leena [Author]; Ott, Hagen [Author] Published: London: BioMed Central, 2018 Published in: 13 (2018), 197 Extent: 1 Online-Ressource (11 Seiten); Diagramme, Karten Language: English DOI: 10.1186/s13023-018-0944-x Identifier: Keywords: Seltene Krankheit ; Genodermatose ; Epidermolysis bullosa ; Medizinische Versorgung ; Umfrage ; Dermatologie ; Kind Origination: Footnote: Access State: Open Access