> Details

Tzortzatou, Olga [Author]; Slokenberga, Santa [Author]; Reichel, Jane [Author]; da Costa Andrade, Andreia [Author]; Barbosa, Carla [Author]; Bekaert, Sofie [Author]; van Veen, Evert-Ben [Author]; Romeo-Casabona, Carlos M. [Author]; Cathaoir, Katharina Ó. [Author]; Chassang, Gauthier [Author]; Debucquoy, Annelies [Author]; Derèze, Jean-Jacques [Author]; Dollé, Laurent [Author]; Fält, Sonja Eaker [Author]; Halouzka, Radek [Author]; Hartlev, Mette [Author]; Hisbergues, Michael [Author]; Hoppe, Nils [Author]; Huys, Isabelle [Author]; Kindt, Els [Author]; Befring, Anne Kjersti [Author]; Kozera, Lukasz [Author]; Krekora-Zajac, Dorota [Author]; Lalova, Teodora [Author]; [...]

Biobanking Across Europe Post-GDPR: A Deliberately Fragmented Landscape - [published Version]

Reference
management

Bookmarks

Remove from
bookmarks

Share this on Whatsapp

Close

Bookmarks



You can manage bookmarks using lists, please log in to your user account for this.
  • Media type: E-Article; Text
  • Title: Biobanking Across Europe Post-GDPR: A Deliberately Fragmented Landscape
  • Contributor: Tzortzatou, Olga [Author]; Slokenberga, Santa [Author]; Reichel, Jane [Author]; da Costa Andrade, Andreia [Author]; Barbosa, Carla [Author]; Bekaert, Sofie [Author]; van Veen, Evert-Ben [Author]; Romeo-Casabona, Carlos M. [Author]; Cathaoir, Katharina Ó. [Author]; Chassang, Gauthier [Author]; Debucquoy, Annelies [Author]; Derèze, Jean-Jacques [Author]; Dollé, Laurent [Author]; Fält, Sonja Eaker [Author]; Halouzka, Radek [Author]; Hartlev, Mette [Author]; Hisbergues, Michael [Author]; Hoppe, Nils [Author]; Huys, Isabelle [Author]; Kindt, Els [Author]; Befring, Anne Kjersti [Author]; Kozera, Lukasz [Author]; Krekora-Zajac, Dorota [Author]; Lalova, Teodora [Author]; [...]
  • imprint: Cham : Springer, 2021
  • Published in: GDPR and biobanking : individual rights, public interest and research regulation across Europe ; Law, governance and technology series ; 43
  • Issue: published Version
  • Language: English
  • DOI: https://doi.org/10.15488/15227; https://doi.org/10.1007/978-3-030-49388-2_22
  • ISBN: 978-3-030-49387-5; 978-3-030-49390-5; 978-3-030-49388-2
  • ISSN: 2352-1902
  • Origination:
  • Footnote: Diese Datenquelle enthält auch Bestandsnachweise, die nicht zu einem Volltext führen.
  • Description: This chapter seeks to provide insight into the ways in which Member States leveraged the regulatory discretion afforded to them by the GDPR. Specifically, it reviews the biobank regulatory environment; whether and how derogations under Article 89(2) GDPR are enabled; the legal basis for scientific research and the role of consent in biobanking post-GDPR; the balance between individual rights and public interest in national law; and finally, the GDPR’s impact and future possibilities for biobanking. In exercising self-determination, Member States can, to a certain extent, align data protection requirements with their values and aspirations. Such alignment, though, could jeopardize collaborative research. In light of the need to bridge divergent legal and ethical requirements at a national and supranational level, the role of Research Ethics Committees (RECs) might prove to be essential.
  • Access State: Open Access