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de Beaufort, Carine [Author]; Cate, Ineke M. Pit-ten [Author]; Schierloh, Ulrike [Author]; Cohen, Nathan [Author]; Boughton, Charlotte K. [Author]; Tauschmann, Martin [Author]; Allen, Janet M. [Author]; Nagl, Katrin [Author]; Fritsch, Maria [Author]; Yong, James [Author]; Metcalfe, Emily [Author]; Schaeffer, Dominique [Author]; Fichelle, Muriel [Author]; Thiele, Alena G. [Author]; Abt, Daniela [Author]; Faninger, Kerstin [Author]; Mader, Julia K. [Author]; Slegtenhorst, Sonja [Author]; Ashcroft, Nicole [Author]; Wilinska, Malgorzata E. [Author]; Sibayan, Judy [Author]; Kollman, Craig [Author]; Hofer, Sabine E. [Author]; Fröhlich-Reiterer, Elke [Author]; [...]

Psychological Well-Being of Parents of Very Young Children With Type 1 Diabetes – Baseline Assessment

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  • Media type: E-Article
  • Title: Psychological Well-Being of Parents of Very Young Children With Type 1 Diabetes – Baseline Assessment
  • Contributor: de Beaufort, Carine [Author]; Cate, Ineke M. Pit-ten [Author]; Schierloh, Ulrike [Author]; Cohen, Nathan [Author]; Boughton, Charlotte K. [Author]; Tauschmann, Martin [Author]; Allen, Janet M. [Author]; Nagl, Katrin [Author]; Fritsch, Maria [Author]; Yong, James [Author]; Metcalfe, Emily [Author]; Schaeffer, Dominique [Author]; Fichelle, Muriel [Author]; Thiele, Alena G. [Author]; Abt, Daniela [Author]; Faninger, Kerstin [Author]; Mader, Julia K. [Author]; Slegtenhorst, Sonja [Author]; Ashcroft, Nicole [Author]; Wilinska, Malgorzata E. [Author]; Sibayan, Judy [Author]; Kollman, Craig [Author]; Hofer, Sabine E. [Author]; Fröhlich-Reiterer, Elke [Author]; [...]
  • imprint: Lausanne : Frontiers Research Foundation, [2023]
  • Language: English
  • ISSN: 1664-2392
  • Keywords: parental well-being ; type 1 diabetes ; child behavior ; very young children ; medicine ; sleepiness ; hypoglycemia fear ; Medizin
  • Origination:
  • Footnote: Hinweis: Link zur Erstveröffentlichung URL: https://doi.org/10.3389/fendo.2021.721028
  • Description: Background: Type 1 diabetes in young children is a heavy parental burden. As part of pilot phase of the KIDSAP01 study, we conducted a baseline assessment in parents to study the association between hypoglycemia fear, parental well-being and child behavior. Methods: All parents were invited to fill in baseline questionnaires: hypoglycemia fear survey (HFS), WHO-5, Epworth Sleepiness Scale and Strength and Difficulties Questionnaire (SDQ). Results: 24 children (median age: 5-year, range 1-7 years, 63% male, mean diabetes duration: 3 ± 1.7 years) participated. 23/24 parents filled out the questionnaires. We found a higher score for the hypoglycemia fear behavior 33.9 ± 5.6 compared to hypoglycemia worry 34.6 ± 12.2. Median WHO-5 score was 16 (8 - 22) with poor well-being in two parents. Median daytime sleepiness score was high in five parents (>10). For six children a high total behavioral difficulty score (>16) was reported. Pro social behavior score was lower than normal in six children (<6). Parental well-being was negatively associated with HFS total (r = - 0.50, p <.05) and subscale scores (r = - 0.44, p <.05 for HFS-Worry and HFS-Behavior), child behavior (r = - 0.45, p = .05) and positively with child age and diabetes duration (r = 0.58, p <.01, r = 0.6, p <.01). HFS, parental well-being nor daytime sleepiness are associated with the HbA1c. Conclusion: Regular screening of parental well-being, hypoglycemia fear and child behavior should be part of routine care to target early intervention.
  • Access State: Open Access
  • Rights information: Attribution (CC BY)