Mathias SD;
Burke L;
Colwell HH;
Mensing G;
Savage W;
Naik H
Development and Content Validation of Novel Patient-Reported Outcome Measures to Assess Disease Severity and Change in Patients with Erythropoietic Protoporphyria: The EPP Impact Questionnaire (EPIQ)
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Media type:
E-Article
Title:
Development and Content Validation of Novel Patient-Reported Outcome Measures to Assess Disease Severity and Change in Patients with Erythropoietic Protoporphyria: The EPP Impact Questionnaire (EPIQ)
Contributor:
Mathias SD;
Burke L;
Colwell HH;
Mensing G;
Savage W;
Naik H