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McErlean, Gemma; Tapp, Caley; Brice, Lisa; Pradhan, Anisha; Gilroy, Nicole; Kabir, Masura; Greenwood, Matt; Larsen, Stephen R; Moore, John; Gottlieb, David; Hertzberg, Mark; Brown, Louisa; Hogg, Megan; Huang, Gillian; Ward, Christopher; Kerridge, Ian

Decisional Regret in Long-Term Australian Allogeneic Hematopoietic Stem Cell Transplantation Survivors: A Cross-Sectional Survey

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  • Media type: E-Article
  • Title: Decisional Regret in Long-Term Australian Allogeneic Hematopoietic Stem Cell Transplantation Survivors: A Cross-Sectional Survey
  • Contributor: McErlean, Gemma; Tapp, Caley; Brice, Lisa; Pradhan, Anisha; Gilroy, Nicole; Kabir, Masura; Greenwood, Matt; Larsen, Stephen R; Moore, John; Gottlieb, David; Hertzberg, Mark; Brown, Louisa; Hogg, Megan; Huang, Gillian; Ward, Christopher; Kerridge, Ian
  • Published: SAGE Publications, 2023
  • Published in: Clinical Nursing Research, 32 (2023) 8, Seite 1134-1144
  • Language: English
  • DOI: 10.1177/10547738231180337
  • ISSN: 1054-7738; 1552-3799
  • Keywords: General Nursing
  • Origination:
  • Footnote:
  • Description: Allogeneic hematopoietic stem cell transplantation (allo-HSCT) is an intensive but effective treatment for malignant and non-malignant diseases. However, long-term survival often comes at a cost, with survivors experiencing chronic morbidity and are at risk of relapse and secondary malignancy. This study aimed to describe decisional regret in a large cohort of Australian long-term allo-HSCT survivors. A cross-sectional survey was conducted with 441 adults in New South Wales, assessing quality of life (QoL), psychological, social, demographic, and clinical variables. Less than 10% of survivors expressed regret, with chronic graft-versus-host disease being the most important clinical factor. Psycho-socioeconomic factors such as depression, lower QoL scores, lower household income, higher treatment burden, and not resuming sex post-HSCT were also associated with regret. Findings highlight the need for valid informed consent and ongoing follow-up and support for allo-HSCT survivors dealing with life post-transplant. Nurses and healthcare professionals play a critical role in addressing decisional regret in these patients.