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Halliday, Lesley E.; Peek, Michael J.; Ellwood, David A.; Homer, Caroline; Knight, Marion; Mclintock, Claire; Jackson‐Pulver, Lisa; Sullivan, Elizabeth A.

The Australasian Maternity Outcomes Surveillance System: An evaluation of stakeholder engagement, usefulness, simplicity, acceptability, data quality and stability

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  • Media type: E-Article
  • Title: The Australasian Maternity Outcomes Surveillance System: An evaluation of stakeholder engagement, usefulness, simplicity, acceptability, data quality and stability
  • Contributor: Halliday, Lesley E.; Peek, Michael J.; Ellwood, David A.; Homer, Caroline; Knight, Marion; Mclintock, Claire; Jackson‐Pulver, Lisa; Sullivan, Elizabeth A.
  • imprint: Wiley, 2013
  • Published in: Australian and New Zealand Journal of Obstetrics and Gynaecology
  • Language: English
  • DOI: 10.1111/ajo.12020
  • ISSN: 0004-8666; 1479-828X
  • Origination:
  • Footnote:
  • Description: <jats:sec><jats:title>Background</jats:title><jats:p>The <jats:styled-content style="fixed-case">A</jats:styled-content>ustralasian <jats:styled-content style="fixed-case">M</jats:styled-content>aternity <jats:styled-content style="fixed-case">O</jats:styled-content>utcomes <jats:styled-content style="fixed-case">S</jats:styled-content>urveillance <jats:styled-content style="fixed-case">S</jats:styled-content>ystem (<jats:styled-content style="fixed-case">AMOSS</jats:styled-content>) conducts active, prospective surveillance of severe maternal conditions in <jats:styled-content style="fixed-case">A</jats:styled-content>ustralia and <jats:styled-content style="fixed-case">N</jats:styled-content>ew <jats:styled-content style="fixed-case">Z</jats:styled-content>ealand (<jats:styled-content style="fixed-case">ANZ</jats:styled-content>). <jats:styled-content style="fixed-case">AMOSS</jats:styled-content> captures greater than 96% of all births, and utilises an online, active case‐based negative reporting system.</jats:p></jats:sec><jats:sec><jats:title>Aim</jats:title><jats:p>To evaluate <jats:styled-content style="fixed-case">AMOSS</jats:styled-content> using the <jats:styled-content style="fixed-case">U</jats:styled-content>nited <jats:styled-content style="fixed-case">S</jats:styled-content>tates <jats:styled-content style="fixed-case">C</jats:styled-content>entres for <jats:styled-content style="fixed-case">D</jats:styled-content>isease <jats:styled-content style="fixed-case">C</jats:styled-content>ontrol (<jats:italic>MMWR</jats:italic> 2001; 50 (RR13): 1–35.) surveillance system evaluation framework.</jats:p></jats:sec><jats:sec><jats:title>Methods</jats:title><jats:p>Data were gathered using multiple methods, including an anonymous online survey administered to 353 <jats:styled-content style="fixed-case">AMOSS</jats:styled-content> data collectors, in addition to review of case data received during 2009–2011, documented records of project board and advisory group meeting minutes, publications, annual reports and the <jats:styled-content style="fixed-case">AMOSS</jats:styled-content> database.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p><jats:styled-content style="fixed-case">AMOSS</jats:styled-content> is a research system characterised by its simplicity and efficiency. The socio‐demographic, risk factor and severe morbidity clinical data collected on rare conditions are not duplicated in other routine data systems. <jats:styled-content style="fixed-case">AMOSS</jats:styled-content> is functioning well and has sustained buy‐in from clinicians, stakeholders and consumers and a high level of acceptability to data collectors in <jats:styled-content style="fixed-case">ANZ</jats:styled-content> maternity units.</jats:p></jats:sec><jats:sec><jats:title>Conclusions</jats:title><jats:p><jats:styled-content style="fixed-case">AMOSS</jats:styled-content> is the only existing national system of surveillance for rare and severe maternal conditions in <jats:styled-content style="fixed-case">ANZ</jats:styled-content> and therefore serves an important function, utilising data collected from reliable sources, in an effective, efficient and timely way.</jats:p></jats:sec>