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Smolensky, Luba; Amondikar, Ninad; Crawford, Karen; Neu, Scott; Kopil, Catherine M.; Daeschler, Margaret; Riley, Lindsey; Agee, Michelle; Alipanahi, Babak; Auton, Adam; Bell, Robert K.; Bryc, Katarzyna; Cannon, Paul; Clarke, Sarah; Elson, Sarah L.; Fonseca, Peter; Fontanillas, Pierre; Furlotte, Nicholas A.; Hicks, Barry; Hinds, David A.; Heilbron, Karl; Huber, Karen E.; Jewett, Ethan M.; Jiang, Yunxuan; [...]

Fox Insight collects online, longitudinal patient-reported outcomes and genetic data on Parkinson’s disease

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  • Medientyp: E-Artikel
  • Titel: Fox Insight collects online, longitudinal patient-reported outcomes and genetic data on Parkinson’s disease
  • Beteiligte: Smolensky, Luba; Amondikar, Ninad; Crawford, Karen; Neu, Scott; Kopil, Catherine M.; Daeschler, Margaret; Riley, Lindsey; Agee, Michelle; Alipanahi, Babak; Auton, Adam; Bell, Robert K.; Bryc, Katarzyna; Cannon, Paul; Clarke, Sarah; Elson, Sarah L.; Fonseca, Peter; Fontanillas, Pierre; Furlotte, Nicholas A.; Hicks, Barry; Hinds, David A.; Heilbron, Karl; Huber, Karen E.; Jewett, Ethan M.; Jiang, Yunxuan; [...]
  • Erschienen: Springer Science and Business Media LLC, 2020
  • Erschienen in: Scientific Data, 7 (2020) 1
  • Sprache: Englisch
  • DOI: 10.1038/s41597-020-0401-2
  • ISSN: 2052-4463
  • Entstehung:
  • Anmerkungen:
  • Beschreibung: AbstractFox Insight is an online, longitudinal health study of people with and without Parkinson’s disease with targeted enrollment set to at least 125,000 individuals. Fox Insight data is a rich data set facilitating discovery, validation, and reproducibility in Parkinson’s disease research. The dataset is generated through routine longitudinal assessments (health and medical questionnaires evaluated at regular cycles), one-time questionnaires about environmental exposure and healthcare preferences, and genetic data collection. Qualified Researchers can explore, analyze, and download patient-reported outcomes (PROs) data and Parkinson’s disease- related genetic variants at https://foxden.michaeljfox.org. The full Fox Insight genetic data set, including approximately 600,000 single nucleotide polymorphisms (SNPs), can be requested separately with institutional review and are described outside of this data descriptor.
  • Zugangsstatus: Freier Zugang