• Medientyp: E-Artikel
  • Titel: Drawing as a Facilitator of Critical Data Discourse: Reflecting on Problems with Digital Health Data Through Expressive Visualizations of the Unseen Body Landscape
  • Beteiligte: Kuksenok, Kit [VerfasserIn]; De Maeyer, Christel [VerfasserIn]; Lee, Minha [VerfasserIn]
  • Körperschaft:
  • Erschienen: Berlin, 2023
  • Erschienen in: Proceedings of the Weizenbaum Conference 2022: Practicing Sovereignty - Interventions for Open Digital Futures
  • Sprache: Englisch
  • DOI: https://doi.org/10.34669/wi.cp/4.13
  • Identifikator:
  • Schlagwörter: Gesundheitswesen ; Visualisierung ; Datenerfassung ; Datenschutz ; digital health ; data visualization ; data ethics ; self-tracking
  • Entstehung:
  • Anmerkungen: Erstveröffentlichung
    begutachtet
    In: Herlo, Bianca (Hg.), Irrgang, Daniel (Hg.): Proceedings of the Weizenbaum Conference 2022: Practicing Sovereignty - Interventions for Open Digital Futures. 2023. S. 131-141
  • Beschreibung: In a 1.5-hour workshop, we used drawing and self-reflection prompts to facilitate a value-driven discussion of personal and institutional data practices. Activities included mark-making in time with one's heartbeat, creating an inventory of one's personal data, and creating a qualitative personal health visualization. This article details the workshop structure and exercises and includes a summary of the discussion, which constructively encompassed both the empowering and the uncomfortable aspects of digital health data collection in a constructive manner. The workshop's design used the format of hands-on, expressive drawing activities to enable participants to achieve depth and breadth in a relatively short discussion about personal health, data autonomy, institutional trust, and consent. Critical discourse about data, especially health data, is a valuable experience for every person whose health data has been or is being collected; and approaches that take personal data as a starting point can support the practice of digital/data sovereignty more broadly.
  • Zugangsstatus: Freier Zugang
  • Rechte-/Nutzungshinweise: Namensnennung (CC BY)